Lipodystrophy United Is Back! Please frequently visit our website to see updates!
Lipodystrophy United Is Back! Please frequently visit our website to see updates!
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World Lipodystrophy Day (WLD) is observed annually on March 31st to bring awareness to the burden of Lipodystrophy. On this day, patient organizations from countries and regions all over the world hold awareness-raising activities.
The first WLD was celebrated in 2013. It was started by AELIP (Asociación Internacional de Familiares y Afectados de Lipodistrofias) in Spain.
WLD is a global effort to raise awareness and highlight the burden and impact of this profoundly distressing condition on lipodystrophy patients. Also, to implement actions that include patients, health administration, medical professionals and stakeholders.
Dr Joe Wiley, CEO of Amryt Pharma:
“Lipodystrophy is a complex and extremely rare disease. People and families with lipodystrophy face an enormous challenge as it can take many years of worsening, distressing symptoms before they get a correct diagnosis and treatment. Education and awareness are critical to improve this diagnostic odyssey and to improve the lives of people living with lipodystrophy. We are delighted to support the global lipodystrophy patient community today on World Lipodystrophy Day.”
Naca Pérez de Tudela, president of AELIP:
“Our objectives for World Lipodystrophy Day include raising awareness of the public health problem posed by lipodystrophy, implementing actions that impact the challenges faced by patients with lipodystrophy and their families, and joining together with the community to pool resources and improve care for those affected by this rare disease.”
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