Lipodystrophy United Is Back! Please frequently visit our website to see updates!
History
Since our inception in 2012, Lipodystrophy United (LU) has made accomplishments that have helped to build a supportive community of patients, improve the understanding of the burden of living with lipodystrophy and expand awareness. LU built a unified patient community as well as trusted relationships with the medical community and other important stakeholders. This progress led to advancement in research and treatments. Due to lack of capacity, the foundation was less active from 2019 - 2023.
Our Mission
Our mission is to increase awareness and understanding of lipodystrophy among the patient community, medical professionals and stakeholders. Lipodystrophy United aims to be the leading resource in the United States for patients and healthcare professionals dealing with lipodystrophy, providing clear, actionable information and support for managing the condition.
Our Future
Our absence proved the great need in the community for full-time advocacy and the voice of the patient, present in decisions that impact patient lives. Our voices matter from diagnosis to research and regulatory processes. It is now in the hands of our Lipodystrophy community to regrow our impact. We need you to get involved!
