Lipodystrophy United Is Back! Please frequently visit our website to see updates!
Lipodystrophy United: Empowering The Lipodystrophy Community
Who We Are
Lipodystrophy United (LU) is an organization of committed individuals living strong with lipodystrophy. Our mission is to provide an interactive community, facilitating support and education for anyone affected by lipodystrophy. We serve as a resource and to increase awareness in the general population as well as the medical and insurance communities. We advocate and act as a catalyst for new patient diagnosis by assisting healthcare professionals in the understanding of lipodystrophy trends, physical attributes and clinical symptoms in order to aid in the advancement of knowledge, treatment and future research.
What We Do
As a group of volunteers, LU is dedicated to meeting our communities’ needs in the US and globally. We provide an informational website with education, patient stories and links to partners and research. We connect patients to each other and to physicians around the world. LU provides frequent updates to the community via social media including new research or community awareness activities. We answer all inquiries that come our way and if we don’t have the answers, we will help you find them. In addition, we actively participate in advocacy training and partner with the greater rare disease community.
