Support Lipodystrophy United with your unique skillset

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Whether you are a patient, a family member of a patient, or a clinician, we would love to hear your lipodystrophy story!

We are currently working on rebuilding our foundation, so we need help with editing documents, social media, reaching out to stakeholders, and brainstorming how we can best support our lipodystrophy community. Contact us if this sounds like something you are interested in!

Are you an experienced fundraiser? We would love to hear your feedback and get your support!  

Educate your community about Lipodystrophy by posting about our community using the hashtags...

#lipodystrophyunited

#lipodystrophy

We need more content for social media and our website, as well as videos of patients sharing their unique lipodystrophy story. Please contact us if you can help with that. 

Are you a clinician or researcher? Are you an expert on lipodystrophy or want to become one? Contact us to join our scientific advisory board. 

We need to apply to as many grants as possible in 2024 so that we can build our community quickly and gain influence with stakeholders! Let us know if you are an expert grant writer and can help us!