Lipodystrophy United Is Back! Please frequently visit our website to see updates!
Why Should I attend LU in person symposia?
Build Connections
Attendees include clinicians, researchers, patients and caregivers, and many other stakeholders. This is a unique opportunity to meet others going through the same things and to meet the very people who are working hard to improve the lives of people living with lipodystrophy.
Learn More about Lipodystrophy from the Experts
Leading researchers and clinicians, will be present to engage with attendees, answer questions, and share insights through their talks.
Shape Future Research and Care
Symposia gather input directly from patients and their families, ensuring their voices are heard in shaping future lipodystrophy research priorities. This is a unique opportunity to contribute to a patient-centered approach in medical research.
Advocacy and Storytelling
People in our community will participate in advocacy training and storytelling workshops, empowering them to share their experiences in ways that raise awareness and foster understanding of lipodystrophy.
OUr Objectives and Approach at past symposia
Symposium Objectives
- A comprehensive approach to defining lipodystrophy including the burden of the disease
- Determine research gaps and priorities
The voices of our community are absolutely essential in following through with those objectives because patients, family members, and caregivers provide unique insights into how daily lives and well-being are affected by lipodystrophy.
Approach: The Delphi Method
We will be utilizing the Delphi method to reach a consensus on our objectives. This process involves gathering input from a group of experts and stakeholders, sharing their opinions and insights, and refining the responses through multiple rounds of feedback. By iteratively sharing outcomes, the group works towards a well-informed and collective agreement.