Lipodystrophy United Is Back! Please frequently visit our website to see updates!

Lipodystrophy United
Lipodystrophy United
  • Home
  • About LU
    • About Us
    • Schedule of Events
    • Our History
    • Our Team
    • LU Symposia
    • World Lipodystrophy Day
  • What is Lipodystrophy
    • The Basics
    • Types
    • Research and News
  • Patient Corner
    • Guides to Lipodystrophy
    • Stories & Community
    • Expert Centers
    • Lectures
    • Clinical Trials
    • Rare Disease Resources
  • Get Involved
    • Donate
    • Volunteer
    • Engagement Opportunities
  • More
    • Home
    • About LU
      • About Us
      • Schedule of Events
      • Our History
      • Our Team
      • LU Symposia
      • World Lipodystrophy Day
    • What is Lipodystrophy
      • The Basics
      • Types
      • Research and News
    • Patient Corner
      • Guides to Lipodystrophy
      • Stories & Community
      • Expert Centers
      • Lectures
      • Clinical Trials
      • Rare Disease Resources
    • Get Involved
      • Donate
      • Volunteer
      • Engagement Opportunities
  • Home
  • About LU
    • About Us
    • Schedule of Events
    • Our History
    • Our Team
    • LU Symposia
    • World Lipodystrophy Day
  • What is Lipodystrophy
    • The Basics
    • Types
    • Research and News
  • Patient Corner
    • Guides to Lipodystrophy
    • Stories & Community
    • Expert Centers
    • Lectures
    • Clinical Trials
    • Rare Disease Resources
  • Get Involved
    • Donate
    • Volunteer
    • Engagement Opportunities

Help Us Create a Community Picture Book

Photo Book Opportunity

We’re creating something special — and we’d love for you to be a part of it!

Lipodystrophy United is putting together a community picture book that will be showcased at the National Lipid Association (NLA) Conference this May, as well as other conferences and educational materials. This project is an opportunity to visually represent the strength, diversity, and resilience of our community to healthcare providers, researchers, and advocates.

If you’d like to be included, please send us:

  • A high-quality photo/s of yourself (solo shots preferred, but family or friends can be included if you wish!)
  • A brief description (2-3 sentences) sharing your lipodystrophy type and a little about your journey or experience.
    • Please include who diagnosed you.

Deadline: Please provide this information by May 10th. 

Additionally, we would like to share these photos on our social media and website. Please indicate if you consent to us sharing these images online, outside of book use.

Please email your photo and description to info@lipodystrophyunited.org with the subject line “Picture Book Submission.”

Family Days

Family Day Interest

We’re exploring the idea of hosting a Family Day in Dallas this June, and we’d love to know if you’re interested in attending!

We’re also planning two additional Family Days later this year—one in Washington, D.C. and one in Michigan. If you live near any of these areas, we’d love to hear from you.

If you’re interested in any of these events, please email us at info@lipodystrophyunited.org. We’d appreciate your feedback on:

• Which location you’re interested in

• Your date availability

• Contact information

• Number of people in your group


Copyright © 2024 Lipodystrophy United - All Rights Reserved.

EIN: 46-1165699


Powered by

This website uses cookies.

We use cookies to analyze website traffic and optimize your website experience. By accepting our use of cookies, your data will be aggregated with all other user data.

Accept