Market Research Opportunity

Calling our generalized community with experience with Metreleptin (Myalept)

A trusted market research company in our network is conducting research on behalf of a pharmaceutical company committed to the lipodystrophy community. Lipodystrophy United met with the research team to ensure the process is patient-centered and respectful. We’re excited to help recruit for this important project.

They are seeking patients with generalized lipodystrophy or their caregivers who have experience with Myalept. Participants will complete a 60-minute web-assisted telephone interview at a time convenient for them. A payment of $160 USD will be provided after completion as a thank-you for your time.

If you are interested, please either fill out the form at the link provided or contact Thomas Herr at Just Worldwide directly by email at Tom@just-worldwide.com or by phone at +1 (609) 955-8001.

All discussions during the research are confidential and must not be shared afterward.

Thank you for considering participating in this important opportunity!

Express Interest Here

Help Us Create a Community Picture Book

Photo Book Opportunity

We’re creating something special — and we’d love for you to be a part of it!

Lipodystrophy United is putting together a community picture book that will be showcased at the National Lipid Association (NLA) Conference this May, as well as other conferences and educational materials. This project is an opportunity to visually represent the strength, diversity, and resilience of our community to healthcare providers, researchers, and advocates.

If you’d like to be included, please send us:

A high-quality photo/s of yourself (solo shots preferred, but family or friends can be included if you wish!)
A brief description (2-3 sentences) sharing your lipodystrophy type and a little about your journey or experience.
- Please include who diagnosed you.

Deadline: Please provide this information by May 10th.

Additionally, we would like to share these photos on our social media and website. Please indicate if you consent to us sharing these images online, outside of book use.

Please email your photo and description to info@lipodystrophyunited.org with the subject line “Picture Book Submission.”

Family Days

Family Day Interest

We’re exploring the idea of hosting a Family Day in Dallas this June, and we’d love to know if you’re interested in attending!

We’re also planning two additional Family Days later this year—one in Washington, D.C. and one in Michigan. If you live near any of these areas, we’d love to hear from you.

If you’re interested in any of these events, please email us at info@lipodystrophyunited.org. We’d appreciate your feedback on:

• Which location you’re interested in

• Your date availability

• Contact information

• Number of people in your group