5 steps for navigating a Lipodystrophy Diagnosis

Step 1: Gather Key Information

Where the diagnosis was done
Clinician who diagnosed you
Copies of Assessment reports, medication prescriptions, diagnostic and imaging tests

Step 2: Look into Government Resources

Check eligibility for Medicaid, Medicare, and Social Security programs

Step 3: Start to Build a Healthcare Team

There are only a few lipodystrophy experts in the US, making it difficult for patients to find knowledgeable care. Seek an endocrinologist willing to learn about the disease and work in partnership with you to personalize your care.

Step 4: Get to Know your Insurance Policy

Eligibility requirements
Benefits
Regulatory information
Grievance procedures

Step 5: Ask for an Insurance Case Manager