World Lipodystrophy Day
Since our inception in 2012, Lipodystrophy United has made accomplishments that have helped to build a supportive community of patients, improve the understanding of the burden of living with lipodystrophy, and expand awareness.
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When is World Lipodystrophy Day?
World Lipodystrophy Day (WLD) is observed annually on March 31st to bring awareness to the burden of Lipodystrophy. On this day, patient organizations from countries and regions all over the world hold awareness-raising activities.
Comments from the Community
“Lipodystrophy is a complex and extremely rare disease. People and families with lipodystrophy face an enormous challenge as it can take many years of worsening, distressing symptoms before they get a correct diagnosis and treatment. Education and awareness are critical to improve this diagnostic odyssey and to improve the lives of people living with lipodystrophy. We are delighted to support the global lipodystrophy patient community today on World Lipodystrophy Day.”
“Our objectives for World Lipodystrophy Day include raising awareness of the public health problem posed by lipodystrophy, implementing actions that impact the challenges faced by patients with lipodystrophy and their families, and joining together with the community to pool resources and improve care for those affected by this rare disease.”
World Lipodystrophy Day Around the Globe!
When Did WLD Begin?
The first WLD was celebrated in 2013. It was started by AELIP (Asociación Internacional de Familiares y Afectados de Lipodistrofias) in Spain.
What is the Goal of WLD?
Visibility
Raise awareness about the public health challenges posed by lipodystrophies.
Community
Launch actions to help prevent the social isolation often experienced by individuals and families affected by lipodystrophies.
Education
Conduct outreach activities to share the characteristics and unique aspects of lipodystrophies.
Advocate
Coordinate efforts with all involved parties—patients, public administrators, healthcare professionals, etc.—to secure resources and improve care for those affected.
What Gesture Are We Promoting?
“L” Campaign
Form an “L” using the thumb and index finger of your left hand.
• The gesture symbolizes the “L” for Lipodystrophy.
• It conveys unity and support.
• It represents positivity and a sense of victory.
Show Your Support on Social Media!
#WLD2026 #TreatmentEquity #Lipodystrophy
How You Can Support World Lipodystrophy Day?
Share Online
Share our website and social media links with your family, friends, and the rest of your network.
Participate
Take part in planned activities, either by attending yourself or by volunteering to help attendees.
Post Your "L"
Post a photo of yourself doing the “L” gesture (with your left hand’s thumb and index finger) and social media. Don’t forget the hashtags: #WLD2026 #Treatment Equity #Lipodystrophy
Press Record
Record a short video of support featuring a well-known public figure.
The News
Help raise awareness through local media in your area.
Email Blast
Send a mass email to your friends and contacts.
Learn About World Lipodystrophy Day from Our Researchers
World Lipodystrophy Newsletter
