About Us
United for Change
Building Community, Driving Advocacy, and Advancing Research
About Lipodystrophy United
Lipodystrophy United (LU) is an organization of committed individuals living with lipodystrophy. It provides an interactive community that fosters support and education for anyone affected by the condition. LU also amplifies the voices of those impacted by lipodystrophy through advocacy, driving global efforts to increase awareness among stakeholders and improve access to care. In addition, the organization actively collaborates with researchers, clinicians, and industry partners to advance scientific understanding and accelerate the development of better treatments for all types of lipodystrophy.
Our Team
Dedicated to serving the lipodystrophy community
Our Story
When patients become the experts
Our Path
From then until now – See how far we’ve come!
The News
Check out our recent media appearances
Fostering Unity and Collaboration with Our Dedicated Partners
