Tell Your Story

A life with lipodystrophy can be as lonely as it is challenging. Finding community and others who understand is a healing experience. Help us pay it forward by providing your story. You never know who you’ll impact by sharing your experience.

We are truly STRONGER TOGETHER!

Patient Stories Form

First Name

Last Name

Lipodystrophy Variant

Congenital Generalized Lipodystrophy (CGL)

Acquired Generalized Lipodystrophy (AGL)

Acquired Partial Lipodystrophy (APL)

Familial Partial Lipodystrophy (FPLD)

HIV-associated Lipodystrophy

Other / Not sure

Country of Residence

Introduce yourself

Describe your life with a lipodystrophy diagnosis

Describe your experience in finding relief for your symptoms

Do others in your family have lipodystrophy?

Why do you think it is important to advocate as a lipodystrophy patient?

What gives you hope for the future?

Upload a profile picture for your story page

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I consent to have this website store my submitted information so they can feature my story alongside other members of the global lipodystrophy community.

I hereby grant Lipodystrophy United permission to use my likeness in a photograph, video, or other digital media (“photo”) in any and all of its publications, including web-based publications, without payment or other consideration. I understand and agree that all photos will become the property of Lipodystrophy United and will not be returned. I hereby irrevocably authorize Lipodystrophy United to edit, alter, copy, exhibit, publish, or distribute these photos for any lawful purpose. In addition, I waive any right to inspect or approve the finished product wherein my likeness appears. Additionally, I waive any right to royalties or other compensation arising or related to the use of the photo. I hereby hold harmless, release, and forever discharge Lipodystrophy United from all claims, demands, and causes of action which I, my heirs, representatives, executors, administrators, or any other persons acting on my behalf or on behalf of my estate have or may have by reason of this authorization. I HAVE READ AND UNDERSTAND THE ABOVE PHOTO RELEASE. I AFFIRM THAT I AM AT LEAST 18 YEARS OF AGE

I agree

Tell Your Story

A life with lipodystrophy can be as lonely as it is challenging. Finding community and others who understand is a healing experience. Help us pay it forward by providing your story. You never know who you’ll impact by sharing your experience.

We are truly STRONGER TOGETHER!

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