Since our inception in 2012, Lipodystrophy United has made accomplishments that have helped to build a supportive community of patients, improve the understanding of the burden of living with lipodystrophy, and expand awareness.
Lipodystrophy UK's World Lipodystrophy Day 2025
Welcome to Lipodystrophy UK’s Patient Day 2025 – an inspiring and informative event bringing together individuals and families affected by lipodystrophy, alongside leading experts in research…
Lipodystrophy UK's World Lipodystrophy Day 2023
In this year’s event, you’ll find: Updates on clinical research and emerging treatments , Personal patient stories and lived experiences , discussions on mental health, nutrition, family support, and…
Storytelling Workshop with Lily Kepner
Lily Kepner, journalist and storytelling expert, gives a workshop on how to tell your lipodystrophy story.
Lunch with LU
Vegetable Broth Cooking Video
Lipodystrophy UK Patient Day 2023 | Insights, Support & Lived Experiences from the Community
Join us for Lipodystrophy UK’s Patient Day 2023, a powerful gathering of patients, families, clinicians and researchers all working together to improve understanding, treatment, and support for those…
Insulin resistance, diabetes and lipodystrophy
Check out this great video Join us for this special Lunch and Learn featuring Dr. Stephen Stone , Assistant Professor of Pediatrics at Washington University School of Medicine. Dr. Stone shares how…
What is basic science, and how can it help
Check out this great video “What is Basic Science, and How Can It Help Lipodystrophy Patients?” Dr. Rochford breaks down the fundamentals of basic science, explaining how it contributes to…
Lipodystrophy in 90 Seconds
Founder of Lipodystrophy United shares a brief description of Lipodystrophy. There are many types of lipodystrophy and a wide spectrum of severity but all types share a lack of adipose tissue in some…
